I remember October 30, 2001 and the days surrounding it in snatches.
The morning of surgery, I was scared to death. An impossibly tall, unforgettably kind anesthesiologist gave me something for my nerves and told me stories about how much he loved to rollerblade in his free time. I don’t remember the ride to the operating room.
The day after surgery, Halloween, I woke up to see little puppy paws on the side of my bed. Memories of therapy dogs in costumes that made me laugh mix hazily with vague impressions of grogginess and nausea.
A couple of nights after surgery, I thought my body was splitting open as pain management did nothing to relieve the screaming of the rearranged muscles in my legs, but did succeed in giving me the worst headache I’ve ever experienced. Finally, I sobbed prayers aloud and my mom reports that I was sleeping peacefully within minutes.
The surgery that changed my life is remembered, 15 years later, through that fog of uncertainty and fear and pain. Pediatric orthopedic surgeons, in a feat I still can’t explain, transferred, stretched, and released the spastic muscles in my legs to help normalize my gait and relieve debilitating knee pain caused by cerebral palsy. But those fearful days – and the months of dependence to physical therapy to recovery to new strength that followed – are the time I learned who I was. I was made of stern stuff and I was going to live my life on big terms.
As the last few weeks of 2001 passed, you couldn’t have convinced 12-year-old me that I was getting stronger. I was miserable and I felt it acutely. I was wrapped in casts, had to be lifted onto the toilet, was separated from school and friends, and depressed that even a textbook recovery from surgery wouldn’t spare me from the occasional “crippled” insult. I rarely left the house, watched too many makeover and home repair show reruns on TLC, was often surly and uncooperative, and cried by myself in the middle of the night when I couldn’t sleep.
When the casts came off four weeks after surgery, my doctors and therapists told me I could start learning to bend my knees again, so I could then learn to move my legs and walk again. They estimated I could get my knees bent to 90° angles again in a matter of weeks, but I could work faster if I wasn’t hindered by pain. So, I bent my knees. It hurt. A lot. So, I bent them further. In a few days, I could sit normally in a chair or on the edge of the bed. For the rest of my recovery I was weeks ahead all of my therapy milestones.
I had learned that pain is temporary and that life is easier when you don’t let it make the rules.
One day in physical therapy I forced myself through laps between the parallel bars and up and down stairs past my breaking point, exhausted but refusing to quit. A few weeks later, toward the end of my recovery, I was tired and hurting and refused to do even the simplest exercises for my therapist.
I had learned that it’s important to refuse to accept limitations, but there’s often a moment of impact with a wall and it’s okay to stop for a while before finding a way over.
A year before surgery I played Christmas carols at the mall with my elementary school orchestra. When we were done playing, my knees had painfully locked from standing in one place for too long and my grandfather had to carry me to the car. A year after surgery, I was walking and standing, limber and pain-free, for hours at a time.
I had learned that pain and fear had earned me my mobility and independence.
Ten years later, that mobility and independence gave me the adult life I lead. I spend my days traipsing around a city I’ve always wanted to call home. I stand up for 8-hour days on the job. I’ve logged thousands of New York sightseeing steps with visiting friends. I’ve slipped in the ice and snow and let strangers help me up, mortified. I’ve taken bad spills on the sidewalk, tripping over nothing, and been frustrated explaining to passersby that I’m not hurt.
Fifteen years later, I’m thankful for every moment.
Because that surgery changed my life. And I earned it.