today i took a cab and the driver had RA and was on humira treatment and we both rant about how shitty autoimmune diseases are yay
stupid joints -.-'
one-brave-princess reblogged
it's awful because you want to give up but you simply can't.. so you have to keep going on in this state, in which your body is destroyed and is destroying the rest of you.. you just wonder when the fatigue is going to stop making everything more difficult.. ughhh.. it makes me really sad
having IBD and OCD stops me from having a sexual life and that's sad because i'm old enough ;(
i can't handle college having IBD anymore.. really, i'm not writing too much because my body says stop i wonder how i'm going to continue this way because i'm terribly destroyed.. jesus i don't know what to do it's like my body is making me everything difficult and impossible
one-brave-princess reblogged
Welcome to IBD Land:
Where the calories don’t matter, healthy food is the enemy, and the only drugs that save your life make you sicker.
one-brave-princess reblogged
I Just Want to Live
Rarely do you ever tell people about the true depths of your loneliness; about how you feel more and more alienated from the world each passing day and you’re not sure how to fix it. It seems like everyone is just better at living than you are, but you just keep pushing forward doing the best you can, hoping for things to look up for you so you can live too.
It's exactly what I felt last night.. I couldn't stop crying.. Loneliness and chronic illnesses are a bad mix
one-brave-princess reblogged
Doing something possibly flare-inducing...and then getting a flare
haahah all the time
living alone and having your energy low all the time is destructive i think i can't go on anymore but somehow i deal to continue living, even when my bowel doesn't help, when my anemia doesn't help, when my stomach doesn't help.. when my family gives a fuck and doesn't help either. i want to take a shower but i'm afraid i can faint in the bathroom because i feel so weak
one-brave-princess reblogged
haveneverfailedtofeel
My chronic pain makes me feel so lonely sometimes. I don’t know many spoonies. I don’t have many people to talk to about pain and have them understand. If anyone ever wants to talk to me, that would be totally awesome.
Today my dear friend Kristin has her second surgery! Kris, sweetie, everything is gonna be okay and you're going to kick this disease! You're stronger than you think you are!
Psssst. Hello, beautiful person. Once you get this you must share five random facts about yourself and then pass this on to your ten favourite followers x
Aww thanks cutie pie!
1. I don't like my hair so I wear a messy bun the most of the time2. Pizza & Pasta are my fav food3. I had to leave my dance classes cause I didn't have the time for them since I started my college classes 4. I have tachycardia the most of the time5. I believe in astral projection and I have lucid dreams at least twice a week.
I forgot to buy my antacid pills and now I'm totally regretting it. I'm on fire *sighs*
You complain about little stuff, look at me, I have this problem, you could be worse
the "genius" of my cousin, who got a dislocated finger and never understood (evidently) that I have an incurable-chronic disease.
since I am anemic, I suffer the cold weather like I live in the North Pole
This is my article published by the Companion Magazine for IBD. I'm so grateful to Kristin, who is a great person with an incredible strength and big, golden heart who gave me the space for expressing myself. And yeah, my name's Valentina and the pic is from 2011, now I'm a lot skinnier than then.. Errata: I just read the text and I found two mistakes, first It's megacolon no macrocolon, and "people don't" not "doesn't". Sorry. As a non-native English speaker, each time I write in English I'm actually thinking in two languages, which confuses me sometimes!