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Adventures of A Lupie Lady

@alupielady

This is my journey. It started years ago, at age 15, with a surprise diagnosis of Lupus. I have been through many tests and procedures, most of which you would rather me not speak of...trust me! But, here I am standing tall, despite the odds. I keep adding diagnosis to my list and struggling a lot more as the days go by. :-/ I have good days and bad days. On my good days I adventure and travel. On my bad days I can be found tucked in bed and spoiled by my family. Love and spoons to you all :-)
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Howdy Tumblr world... Its been awhile since I have been on. I'm trying to catch up a bit with everyone. I have had a few really bad spells in a row with my lupus but... Hopfully I am on the up and up now. Two words... Autoimmune pancreatitis!!!! Ouch ouch and more ouch!

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My doctor: if you have these symptoms, you MUST go to the ER.
Me (having the symptoms): eh I’ve made it this far. I’ll probably be fine.
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When your love sits you down in your favorite chair with a glass of wine and your laptop... and then makes you dinner and cleans the kitchen... feeling spoiled :-) 

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You know you are chronically ill where every time you meet a new doctor it feels like a job interview. Showing up, dressed up with a bunch of paperwork, wondering if this one will take you seriously.

But not *too* dressed-up or put-together, because that would mean you’re obviously faking, not that you used half your day’s energy in order to make a good impression by “looking like you care” Gotta strike that balance.

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alupielady

So. Much. Truth

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When my chronic health issues won’t go away

I’m like:

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[Image Description: A gif from Full House wherein one of the little twin girls with blonde hair in pigtails tied with pink scrunchies says dejectedly, “But I was polite and I said please.”]

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Well... I have Had a job for 3 months now :-) I'm on a roll!

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Me: Santa, can I have a unicorn for Christmas?
Santa: Be realistic my child.
Me: ok. Can I have a pain free day?
Santa: what colour unicorn do you want?
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lesbianrey

doctors: don’t go off this medication suddenly!!!!

also doctors: hmm i’m going to take my damn sweet time approving your refill lol too bad if u run out?

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nekobakaz

also doctors: you need a refill? oh, come in for an appointment that’ll be way past when u’ve run out

the pharmacist who you see every month: ummm we don’t have this lol? come back in 5 days. and take this prescription with you it is tainted and you take a Bad Drug and we are Suspicious of you

also doctors: hmmm yeah i don’t think you need this anymore because it’s working so well you don’t have the symptoms anymore so go ahead and stop taking it suddenly

doctor: just take as needed pharmacist: NO you’re supposed to take it EVERY DAY also doctor: You can totally mix these medications aslo pharmacist: Your doctor is a moron

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Raise your hand if you’ve ever missed telling a doctor about an important symptom because you’re so used to it you kind of just thought that was what bodies do.

🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻

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