You know you're a spoonie
When the medication reminder alarm goes off again and you pout and defiantly say “NO!” like a two year old.
I don’t want to be normal as in -
- has a job
- owns a car
- had X amount of partners
- lives in a city
- follows fashion trend
- attended college
I want normal as in -
- able to shower when I like
- eating various foods without consequence
- can walk up stairs with ease
- going to the bathroom near the average amount
- having skin that functions correctly
- remembering words like “fruit”
- going out without imagined pain
- can be near a light and not throb
- can move without flinching/cracking/needing a break
- waking up with energy
I want my health back
fibroautoimmunecfsdeathmatc-blog reblogged
When I discovered the Spoonie community after three years of being sick...
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still too bright
good I’m not the only one w this problem
Oh my god YESSSSS
what it’s like for regular students:
what it’s like for spoonies:
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The time you think you should maybe be concerned about your symptoms, but you look them up and your various diseases all pop up as possible causes
Anonymous asked:
Seemingly odd ask but its bugging me. Do any chronic pain spoonies find themselves rocking/shifting a lot while within a flare?
YES.
It’s a common defense mechanism our body employs as a way to reduce pain. When our brains are overstimulated by our constant discomfort, our pain receptors are often overloaded. Our brains then translate that message and try to almost distract ourselves with repetitive movement. Not only do people with chronic pain do it, but babies & children, as well as people with autism and dementia.
"You're too young to be this sick."
Me: i want to sleep for like 30 hours
Friend: you know that's a coma right
Me:
Me: god that sounds so refreshing i could totally go for a light coma right now
When I overhear people who are clueless about health...
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nightmarekite-deactivated201505
Ok fuck you if you don’t support physically disabled people who ‘make themselves worse.’ Smoking, wearing heels, drinking or having physically taxing hobbies/interests should not be a privilege of able bodied people. Having personal autonomy to make choices about your own body be they ‘healthy’ or ‘unhealthy’ should not be a privilege of able bodied people.
SO.MUCH.YES.
fibroautoimmunecfsdeathmatc-blog reblogged
do you ever just want someone to come over and sit on the floor with you for a few hours
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"So it's not forever right? You're like totally going to get better?"
fibroautoimmunecfsdeathmatc-blog reblogged
"So it's not forever right? You're like totally going to get better?"
fibroautoimmunecfsdeathmatc-blog reblogged
[Batteries in various stages of power against yellow background. Title text: “Effects of Social Events on Spoonies.” Battery 1 is 3/4 full with caption: “Getting ready.” Battery 2 is 1/2 full with caption: “1-3 hours at event.” Battery 3 is 1/4 full with caption: “1-3 hours at event.” Battery 4 is empty with caption: “Travel home.”]
fibroautoimmunecfsdeathmatc-blog reblogged
Living with chronic pain does weird things to you...
Stabbing pain in torso?: No big deal, I GOT THIS!
Back pain so bad you can't walk?: I'll be fine, it's not that bad.
Vomiting from severe stomach cramps?: I will survive!!!
Literally just a small scrape on the knee: IT HURTS SOOO BAD!!!! I CAN'T HANDLE THIS!!!!!