Being disabled is like waking up and someone being like; “Congratulations people are going to treat you very poorly for something you can’t control, and it’s going to be something that you’re going to have to deal with for the rest of your life. And if you don’t learn how to cope you’re thin-skinned, spineless, and you hate yourself. And on some days, you’re not going to be able to decide what is worse. People who treat you like you’re sub-human, or people who overreact to the fact that you’re still human.”
And most of the time you make an effort not to think about it all. To not put it into words. Because if you were to truly give name to all the fucked up shit that’s happened, if you gave voice to all the things you are unable to do. To all things you will miss and have missed out on…it’d just be the door to another sad place. And you’re trying to stop kissing depression on the mouth.
To have been mocked, ridiculed and made fun of for an entire lifetime, knowing that there is still a lifetime more to come, is like trying to swallow sand. To know that too often you are the elephant in the room, the cage, and the equality brigade all in one, sucks.
Being disabled is hot dog water. It’s dog shit. I wouldn’t beat someone down in a dark alley with it. But there’s a prevailing sense that you can’t be honest about it, at least not completely. You’re expected to put a positive spin on it, or else people might think you hate yourself. Or that you’re too negative, or that you’re ungrateful. Because, you guessed it, “it could always be worse.” But there’s a reason I don’t tell kids that there are starving kids in Africa when they refuse to eat their food, or when they throw it away without so much as the second thought. Because telling them there are starving kids in Africa is not only reductive of a continent, it won’t change the fact that if they don’t like it, they’re not going to eat it. Nor will it change the fact that if they’re not hungry, they often times won’t see the value in food being present. If you’ve never known a certain kind of struggling, you’re only ever going to be able to look it in the eye once it punches you in the throat. And that’s just how it is. There are things that you will never understand no matter how hard you try, unless you’ve been there.