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OUR GALAXY

@ourgalaxysystem / ourgalaxysystem.tumblr.com

(formerly JoProgo) Queer DID System chronicaling our life with mental and physical illness.www.youtube.com/ourgalaxy
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BIG DIPPER: the smoke is getting more intense again. Welcome to October I guess? https://www.instagram.com/p/CFztY5JpI1h/?igshid=1qnircn9u4u7o

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BIG DIPPER - Wilderness, our 6month old normal corn snake, disappeared the other day. After taking apart her tank I finally found her inside the pot with the inch plant that trails around her tank. Now I find her there all the time, sticking out her head to check on things. What a lovely creature. #cornsnake #cornsnakesofinstagram #inchplant #babysnake #didsystem #reptilesofinstagram #disability #cuteanimals https://www.instagram.com/p/B_0XyA5pwHL/?igshid=e57rgpgas31n

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PSA: Masks are not to protect you, they are to protect everyone. 50% of us are carrying coronavirus without symptoms, including children. Any mask worn over your mouth and nose reduces your risk of spreading the virus. 50% of us are incubating it right now. Even if you feel healthy, me and my family are not. You and your children wearing masks helps protect us. It's frightening how cavalier people are, like nothing can touch them, like a mask is a nuisance. But y'all, this virus can and will kill more people, and I don't want it to be me or my family. My mask doesn't protect me, it protects you. Your mask protects me. Your children's masks protect me. We're all in this together. So Together we can wear these truly irritating accessories, look completely adorable, and save each other's lives. Models in order of appearance: Juniper, 4, kid pronouns Theodore, 30's, he/him Finch, 8, he/him Moon, really old, they/them #coronavirus #covid_19 #pandemic #masks #masks4all #masksforkids #coronaquarantinewithkids #socialdistancing #medicalmasks #trans #transgender #nonbinary #enby #lgbt #lgbtq #queer #mentalhealth #mentalillness #disabilityawareness #chronicillness #lymedisease #dissociativeidentitydisorder #wheelchair #mecfs #chronicpain #didsystems #queerfamilies #autoimmunewarrior #personalprotectiveequipment #savinglives https://www.instagram.com/p/B_YC3n7JuOv/?igshid=1fo2ap1mz41yb

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Theodore - we had our fourth seizure since seeing #hamilton two days ago. It lasted about 12 minutes, which is a long time, even with #nonepilepticseizures We knew it would be a big crash after an event like #ham4ham But I don't think we expected this big. Our seizures were down to like 1 or 2 a month. So having four in one weekend is a huge jump. It was incredible seeing the show. But sitting in the front row meant the lights and sounds were painfully bright and loud. Our brain and spine were burning by intermission and we had to close our eyes during some of the second act because we were in so much pain and trying not to have a seizure during the show. We were so brainfogged that it's hard to remember the show now and we feel so sad. I hate that choosing something life-giving also means dealing with severe symptoms and a #chronicfatiguesyndrome energy crash that could last week's or months. Is the trade-off worth it? Is feeling this bad for days worth enjoying ourselves for an evening? Yes, and no. We remember our delight and how inspired we felt to take up more space. We remember the pain. We are glad we chose to go. We are frustrated at the result. That's #lymelife I guess. #disability #mecfs #lymedisease #wheelchairlife #chronicpain #didsystem #dissociativeidentitydisorder #puppy #pnes #seizuressuck #esa #stayalive https://www.instagram.com/p/B9f1iANJOjp/?igshid=1dh4c2utnrcu3

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Ellory - last night we won the Hamilton lottery and got ten dollar front row tickets. What even??? So here we are, ridiculously happy and ridiculously tired. Thank you @koreandco for the photos and the magnificent evening. #wheelchair #enbies #disability #ham4ham #queer #trans #dissociativeidentitydisorder #didsystem #cptsd #lymedisease #mecfs #caregiversupport https://www.instagram.com/p/B9dEQmOpGnx/?igshid=1l9hzx7zyf2gk

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Theodore - just finished the first full draft of a novel we started 7 years ago. It's called Elsewhere, book one of the Star|People. It's about star|people and saving the galaxy and disability and DID and nonbinary queerness. One day we hope it will be published. Now we get to revise and fine tune (way easier than drafting I think). Do you want to hear an excerpt? I could put up a reading on YouTube. It could even be live? I'm spinning with excitiment. Being a writer is quite solitary, but we'd love to share more. Happy finish your novel draft day! #writersofinstagram #writerslife #novelwriting #didsystem #disability #queer #nonbinary #savethegalaxy #starpeople #elsewhere https://www.instagram.com/p/B7HQbJapPxw/?igshid=gcicogrl5fcm

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Cw: baby snake Pleiades (22): happy birthday and happy new years! Welcome our new baby corn snake, named Wilderness Poetry Mantle. Nicknames include Nessy, Nessa, Nesst, etc. We got her on Saturday January 4. That's just two days after I grew up from 12 to 22. Animals bring us so much delight and stability. Before getting her I don't think we'd actually held a snake before, let alone cared for one. Shoutout to @snake.discovery and @go_herping for making videos that teach us so much about snakes. It's gonna be great. #babysnake #altergrowsup #didsystem #chronicillness #cornsnakesofinstagram #pleiades #delight https://www.instagram.com/p/B7FWnS5pmVx/?igshid=c3w2avseya94

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Pleiades - Happy birthday to myself! Today I became 22. I was 12 years old for 18 years, until today. I am glad to grow up, I wanted to for so long. But I wanted to grow up with past Jupiter, an alter who recently integrated with Jo. But before, They were 14 and I was 12 for almost 20 years, and we were partners, best friends, co-hosts for a time. My heart broke when they integrated. Being 22 isn’t the same without Jupiter growing with me. Still, I’m so relieved I’ll never be 12 again. I’m looking forward to adulting at last. Grieving past Jupiter also means finding a way to honor how deeply they impacted my self. Let the eternal love of adolescent Pleiades and Jupiter be the candle flame in our hurricane. https://www.instagram.com/p/B618emKpkDZ/?igshid=y95w2jbomkd

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Ellory - starting a two week antibiotic treatment for SIBO (small intestine bacterial overgrowth). Bring on the herx! Killing the bacteria releases toxins causing some of our symptoms to worsen for a time. Like fatigue, brain fog, feeling like we have the flu. But it should help us feel a little better soon. It’s nice to be able to do something. #sibo #herxing #lymedisease #xifaxan #chronicfatigue #ibs #gerd #brainfog #chronicpain #dissociativeidentitydisorder #alters #chronicillness https://www.instagram.com/p/B5qsdyWJA69/?igshid=1qz4u4p315i5p

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Theodore Forgot our video was premiering at 7pm. Thought we'd scheduled it for 8pm. Facepalm. And we were really excited for this premier too!! Thank you to everyone who watched so far! If you haven't already then go check out our video! https://youtu.be/rswm6LewYYM Believe yourselves And set reminders for all your premiers Love Theodore and Our Galaxy #dissociativeidentitydisorder #didsystem #integration #alters #videoseries #youtube #ourgalaxy #premier #concert #covers https://www.instagram.com/p/B5JxonmJJFC/?igshid=v6btk8ff6p56

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Ellory DID has way more to it than multiple personalities/identies. Got this graphic from: (let me find the name just a moment) #did #dissociativeidentitydisorder #dissociativedisorder #alters #depersonalization #derealization #dissociativeamnesia #dissociativefugue #multiplepersonalities https://www.instagram.com/p/B5B8qOEngp8/?igshid=1unweh36obve7

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Ellory (and Pike): Sorry we haven't published our next integration video yet. It's almost ready. We meant to do it today. But we're exhausted and feeling like the world is closing in on us. As rewarding as it is, it's also so hard being vulnerable on the internet. Certain days we are not brave enough. Today we need so much more energy than we have. We feel this urgency to keep working hard every minute to repair or heal. But our crash point is real, it happens so quickly, and we can only heal it through rest. We had the stomach flu last week and spent the weekend trying to find housing resources. But now we are too fatigued and brainfogged to make sense of things and have to wait until our body can function a little better. The universe is always changing and becoming different. Maybe this hard time is remaking us. Perhaps there are forces out there working for our good. Maybe despite us having to take a moment, something better will reach our horizon. We're still here. We're still trying to untangle all the harm from all the love and understand how it can be this way? We are all so intertwined. side note : why do our thigh and butt muscles hurt so much? Believe yourselves Baby Stars. #dissociativeidentitydisorder #didsystem #survivor #chronicfatiguesyndrome #chronicfatigue #chronicpain #chronicillness #lymedisease #mentalillness #mentalhealth #abusesurvivor #doingmybest #universehasyourback #believeyourself #weareintertwined https://www.instagram.com/p/B5B6Sv5nVbs/?igshid=11lsp20it2y71

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Are you confused by ani’s integration? Let us explain it to you, it’s a good story! Go to YouTube.com/ourgalaxy and check out our last video and our Integration playlist. Or, here’s a link you can copy and past https://youtu.be/VDyA6z6sRyE New videos every Monday and Thursday. ❤️❤️❤️ Theodore and Our Galaxy #dissociativeidentitydisorder #didsystem #integration #alters #mentalhealthawareness #mentalhealthdisorder #mentalillness #chronicillness #pnes #seizuredisorder #spoonie #housebound #thisisourlife #education #multiplepersonalities #mpd #bigdipper #video #explained https://www.instagram.com/p/B43uT2YpjUO/?igshid=mey4ofawq20v

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