Avatar

that chronic feeling

@thatchronicfeeling / thatchronicfeeling.tumblr.com

notes on life with long-term illness (queer, mid-30s)
Avatar

Your parents are not "narcissists". They're typical authoritarian assholes who treat you like their property because society allows them to.

Your ex boyfriend is not a "narcissist". He's a typical misogynistic douchebag who treats women like shit because society allows him to.

Your boss is not a "narcissist". They're a typical classist dipshit who thinks workers' entire purpose in life is to generate profit because society allows them to.

And even if they happen to be a "narcissist", that's not what gave them the power to get away with abuse.

So stop blaming mental illness and start blaming society's normalization of abuse. Stop acting like someone has to have a mental illness in order to do something cruel when ordinary people have been doing atrocious things since forever.

Pathologizing abuse, whether it’s in the home or the workplace, whether it’s physical or emotional or sexual, stops us from being able to recognize the hegemonic structures that make abuse so universal. It is not aberrant, it is completely normal, and that should spur you to action

Avatar

If you are physically able to do something for a short time, but it really hurts you, you should not be expected to do that thing.

Living with chronic pain is hard enough, I'm done hurting myself so that others don't have to think about accommodating my disability.

Avatar

Free Compression/Shapewear Garments

Hey folks, I've been trying out different kinds of compression and 'shapewear' garments to see if they will help my POTS. In the process, I've accumulated a few items that either don't fit or don't work for me. If you'd like either/both of these items, please tell me. I will post them to you for free. 1) 1 pair of Haddenham Star Cotton Below Knee Stockings, size III (Class 1 (18-21mmHg), Regular Length, Closed Toe, Black) Worn once + hand-washed Link to Haddenham Size Guide Note: These were too short in the foot for me. I have size 7-8 UK 'women's' feet. 2) 1 pair of shapewear shorts (UK size 20; I think this is equivalent to US size 16) Worn 3-4 times + hand-washed

Shorts have been claimed. Stockings still available!

Avatar

I hope this week is gentle with you, and if it isn’t then I hope you are gentle with yourself. I hope you smile a lot and that you stumble on something joyful that makes you reconnect with a part of yourself you haven’t for a long time. 🌸

Avatar
Avatar
poetkid
Avatar
regalbastard

Transcript: "Being young and sick is sorta like being elderly, except we lack the reflection on all the great times and great things we did long ago. Instead, we watch our peers make the memories and strides they'll look back on fondly, bitterly observing and praying for our chance. Our time." (End)

This. It's so hard and awful. I find it really hard thinking about this. It makes me really sad. And then I get filled with bitter rage too. If I do make it into old age, woe betide *anyone* who has the audacity to complain about having health problems for the first time. Or, frankly, any of my contemporaries now. If you made it into your mid-late 30s or beyond without any health problems, I'm not the audience for you whining about any ill health that has developed for you recently. Especially if you choose not to wear a mask.

Avatar
Avatar
sickbo

i don’t know how many times i need to tell people to mask during a current pandemic w a rapidly evolving virus. people only realise until it’s too late when they’ve become disabled

Avatar
Avatar
sickbo

finding media to keep me company that requires low critical thinking (an actual requirement due to my brain fog, mind you) has actually been a bit tough. luckily i found an audiobook of the bridgerton story (penelope & that dude) that is both engaging & fun.

Oof, this is so relevant to what I'm dealing with.

So much cognitive disfunction. I used to 'only' have problems with concentration, which meant that I couldn't read books. As my health improved, I slowly regained the ability to read again. This happened twice. Also: I was able to listen to any audiobook I wanted, there just weren't tons available at those times. Now I can't read print books because I have a visual processing disability. Reading on-screen is extremely difficult because of *other* visual processing stuff. I can listen to audiobooks, but only at reduced speed. And only when the level of language -- and plot -- is relatively simple. I consider my current level of cognitive dysfunction to be an intellectual disability. Because it has hugely affected my ability to think and understand. Anyway, if anyone has recommendations that would fit @sickbo's description above, I'd love to hear about them! (I'm mostly into romance and things that are queer. Willing to consider romance involving characters of all genders. I listen with bisexual ears.)

Avatar

hug (if want) and good vibes to people feel don’t have complete control over body for whatever reason. Include but not only: tics, Tourette’s, paralysis, tremors, weakness, spasticity, spasms and other things. Hope doing okay and having alright day :) (smiley face).

Avatar
Avatar
rebellum

Not queer as in gay but queer is in a political movement against heteronormativity, amatonormativity, cisnormativity, ideals of parenthood with a single long term partner as 'THE natural part of life that everyone wants'

Queer as in sex ed for kids and the elderly, queer as in free condoms in old folks homes, queer as in destigmatize STIs and stop calling them dirty, queer as in pro-sex workers and decriminalization

Queer as in decolonisation, prison and police reform/abolition, as in education reform, as in medical reform, as in harm reduction clinics, as in not only more women's shelters but also men's shelters and gender-neutral shelters

Queer as in anti-racist, anti-fascist, anti-transphobia, anti-queerphobia, anti-intersexism, anti-aphobia, anti-fatphobia, anti-islamophobia, and anti-antisemitism

Queer as in "yeah my gender IS sparkly blue and my sexuality is one you've never heard of and that's okay"

Not queer as in gay, but queer as in rallying call

Person I reblogged this from thank you for the tags!! I knew I was forgetting SOMETHING when I was writing it but couldn't figure it out, especially since I wrote stuff down and then tried to rearrange it and stuff

Absolutely,

Queer as in anti-ableism, queer as in pro-bodily autonomy and pro accessible healthcare. Queer as in "we don't have marriage equality until EVERYONE can get married, until disabled people can get married without losing their govt appointed money". Queer as in truly accessible spaces, as in built in options for people with different disabilities to participate in the environment, as in anti-forced hospitalization and pro- easily accessible medication.

Queer as in wearing a mask

Avatar

Alright I'm extra disabled today (due to yesterday's decisions) and bored as hell so. Ask game: send me the name of a plant and i'll try to illustrate it from memory. If you send a plant I don't know, I'll draw what I THINK it should look like.

Oh fuck I lost a (wet, paintful) paintbrush in the bed

I have to find it before my partner comes to check on me or I will NEVER live this down. send help

My cousin insisted on painting in bed when we were kids (she and I shared my bed when the cousins came to visit) I said 'this is not a good idea'. Reader, you know how this story ends. (my parents never let me live it down. I was definitely the smaller/younger cousin) Rooting for you @theophrastus-bombastus-von-hoe!

Avatar
Avatar
middle-eastt

“Are you gonna let politics ruin a friendship?”

Yes tf I am

People talk about politics as if it’s this isolated, abstract concept that only matters at election time. Somebody’s politics is their world view. It’s whether they think certain human beings deserve rights. It’s how they think the world should be. And if somebody thinks that the world should be colder, meaner, less accepting and downright hostile to people that are different to them, then sure as fuck is the friendship over.

Avatar

Hello, tumblr. It's your friendly light sensitive individual. Some of you might remember me from my banger 2012 post about cosplaying and reading Homestuck as a light sensitive seizure having person. It seems we've all forgotten something that's vital to accessibility:

tagging things that might cause other people migraines, seizures, or other disorienting issues caused by light and color.

Suggestions: Flashing, gif, flashing warning, gif warning, seizure warning, light sensitive

If you're not sure if it's a problem or not, tag it. It takes two seconds and helps a lot of people use the site, thanks to the lovely built in tag blocking system.

Thank you in advance.

Sincerely: A bitch who's really tired of having seizures, head pain, and being disoriented, and just wants to enjoy the community.

Avatar
Avatar
mamoru

even if you care deeply about some specific kind of suffering you do not have to fill your life with as many upsetting stories of that type of suffering as possible. that is just signing up to have a bad time.

does you absorbing this information help you benefit a cause? and even if you are benefitting a cause, are you doing something productive with more of these stories or are they just making you feel bad? are you taking more effective action or just getting overwhelmed with sadness? is surrounding yourself with stuff that upsets you helping you more than it hurts you?

Avatar

Protect trans children.

They need safety, love and the chance to flourish.

You are using an unsupported browser and things might not work as intended. Please make sure you're using the latest version of Chrome, Firefox, Safari, or Edge.