New research alert! Research about research, actually!
A couple of years ago we recruited here (and elsewhere) for interview participants for a research study about fat people's experiences online. As part of that study we also asked for thoughts about how to ethically conduct such research, both in online communities and in human-computer interaction research more generally. This short paper was presented as a poster at the ACM Conference on Computer-Supported Cooperative Work & Social Computing. Led by PhD student Blakeley Payne, this also won the conference's Best Poster Recognition! <3
"How to Ethically Engage Fat People in Research"
(1) Choose respectful language. Use participants' own self description in conversation and reporting. Consider the connotations of euphemisms and medicalizing language. We recommend "fat" as a default term to use until participants or the context indicates otherwise.
(2) Consider positionality and practice reflexivity. Fat people are not a monolith but are experts in their own lived experiences. Engage with the history of fat oppression, especially as facilitated by research and medical institutions. Consider your positionality with respect to this history.
(3) Rethink assumptions around weight loss. Don't assume fat people are unhealthy and/or want to lose weight. Interrogate "weight loss" as an embedded design value and its potential for harm. Use notions of health that are weight-neutral such as Health at Every Size.
(4) Engage fat people in research. Fat people want to be engaged in technology design and research! Center fat people's voices, needs, and desires when choosing research questions and methods.
Citation and (open access!) link to full paper: Blakeley H. Payne, Jordan Taylor, Katta Spiel, and Casey Fiesler. 2023. How to Ethically Engage Fat People in HCI Research. In Companion Publication of the 2023 Conference on Computer Supported Cooperative Work and Social Computing (CSCW '23 Companion). Association for Computing Machinery, New York, NY, USA, 117–121. https://doi.org/10.1145/3584931.3606987