✨🌛🔮 …Wolfmama needs help… 💜🌙✨
Hey guys, just thought I’d put my story out there in an effort to raise money for my family to get out of a tight situation.
In 2013 I was struck down with a rare disease that doctors would deny or refuse to look into for three years. I slowly lost the ability to walk and suffered from severe chronic pain. When I finally could no longer walk and was losing control of my bladder they finally ordered an MRI and found that a giant cyst at the end of my spinal cord had eroded my sacrum so badly it had burst out of the bone, wrapping around the left side and was crushing all the major nerves going to my left leg. I was told no surgeon in their right minds would touch me, because one minor slip and I would be dead or paralyzed and that’s just a lawsuit no hospital would risk. I was told I would never walk again, spending the rest of my life hooked to a morphine pump and a bag.
I somehow forced myself through decades of self-hate and found the strength to tell her no, no that’s not how my story goes.
You see, for many years I have dreamed of travel. Of visiting and learning from already established communities. Of eco villages and sustainable living. Of creating a hub for the cosmic tribes of the earth to unite and share company. I have a destiny. I will create Gaia Healing Gardens, and the cafe shop onsite Four Goblins. We will host yoga and meditation retreats, creative workshops and help people heal the planet and themselves. I was not going to accept that fate which so many doctors had thrown at me.
I went to google for a second opinion and who would have guessed that an entire Tarlov Cyst Institute existed in Dallas and was right on the front page. In March 2016 I flew to Dallas with my husband for a consultation with Dr. Feigenbaum, and was told that as an emergency case, they were able to get me surgery in just a few days. My cyst turned out to be something even more rare than Tarlov, something called a Meningeal Diverticulum- a condition so rare that the last two times I went to the ER they couldn’t find it in their system.
I survived the risky surgery and slowly but surely, I was showing improvement. I am so blessed to have gotten the surgery so soon, and luckier than most to have family that pitched in for the initial cost. But I’m not out of the dark just yet. I have not been able to hold a traditional job in years, save for my work at the Renaissance festival. They have been more accommodating and I’ve never had a job that suited me so well. But the Michigan Renaissance festival does not start until August, and with mounting medical bills, student loans, and the cost of medicine we are in trouble.
Our current house is falling apart. Our neighbors are toxic and crazy and scream curse words all day and we keep finding broken glass in our yard and the playground is full of glass. The water is orange and destroys skin and hair and clothing. We’ve lost hundreds of dollars in cloth diapers and clothes, no matter how much softener we add the water just blasts holes in everything. The front porch recently went out under us (causing a big bad pain flare up for me) and the bath fan leaks buckets when it rains which is a major slipping hazard. The landlord is upping the rent in July. But good news! We have a way out! A way for us to both be able to live affordably and travel and learn and prepare for our destiny!
In April we purchased a bus with our tax refund, and for the last four years I have researched and designed our soon to be home! I’m currently struggling with scar tissue interfering with my nerves and my sacrum swelling, waiting to hear back from doctors while I find my pain back at square one and am once more losing my ability to walk. We need to be able to pay friends for working on the bus. We want to get our daughter Bryn into daycare so she isn’t stuck at home with me having to lay down three times a day and unable to get up from the floor. She needs to play.
I am not asking for donations. I would prefer an exchange in providing my services. Please help boost this masterpost to help spread awareness about this rare disease, and please help support my family and our dreams by buying something wonderful from my etsy shop! I have many talents, ship internationally, and sell items as low as $3! Some of the services and creations I offer include the following:
🌟 Watercolor Paintings and Commissions (pinup/erotica accepted!)
🌟 Healing Gemstone Jewelry
And that is only the tip of the iceberg. If you’ve read this far, know that I am eternally grateful. If you can only afford a $3 item or $5 tarot reading, know that every little bit helps. I’ll even post a link to our amazon grocery wish list for those who would feel comfortable donating food so we can save some money. Check my Instagram for weekly Tarot reading specials and auctions on vintage goods!
