When you're feeling ok, and then out of nowhere, your body's like:

every healthy person who recommends yoga and vitamin supplements to a person with an incurable illness owes me 10$ pay up uglies

And if they recommend veganism, they have to give 50$.

$100 if they say “you just have to have a positive attitude”

$200 if they say “going gluten free really works! You should just try that!”

The fine is $1,000 if they tell you to”Just go for a walk!  It’ll cure what ails you.”

$2,000 if you use any sort of mobility device.

$100,000 fine for smiling condescendingly and saying “that’s not actually a real condition”

this goes up to $10mil if the speaker is a specialist you’ve waited 6 months to see, who doesn’t take your insurance so you had to pay the outrageous fee up front and out of pocket, who then follows up that statement with “try not to sleep so much and don’t let things bother you”

Another $100,000 for the specialist that says ‘You’re just hypersensitive to what is happening in your body so you make every little twinge a big thing. Just rest and have plenty of fluids and try not to stress too much’, which came after the statement of ‘I don’t like treating Lyme disease patients; they’re so whiny.”

do you ever just look at something you used to do, and stopped because of your illness.

and you just sit there and wonder “do i want to do that again? could i? how would that go with what- who- i am now?”

its just depressing, because i realized alot of my hobbies ive given up either because of my illness, or because ive gotten too busy and too exhausted to do them, because of my illness.

i want to try again, but i dont feel like putting in the effort for something that might not work out.

sometimes my illness doesnt take away my ability to do something, just my motivation to try.

Being chronically ill and concerned about your weight is wild like… oh u wanna exercise? U can’t. Faint. Pain. Oh so eat healthy then? Nope. Need to eat one hundred salts. Meal replacements? Not enough water.

Like listen body I’m tryna LOOK AFTER U?

Spoonie Things

When the hospital keeps trying to find explanations for your episode AFTER you’ve told them about your chronic illness that definitely caused it?

Life as a Spoonie

Hmm I’m not feeling well today, I wonder what the cause could be?

Is it Chronic Illness 1

Chronic Illness 2

Something I ate

Stress

The Weather

Mental Illness 1

Mental Illness 2

Medication 1 Side Effect

Medication 2 Side Effect

Medication 3 not working like it’s supposed to

Stress

Medication 4 interacting with Medication 1

Sleep

Dehydration

Menstruation 

Something else I ate

Stress

You decide! Vote now on your phones.  Just text 1-800-spoonie with your answer and it might be correct! Who knows? Not me!

if this isn't me

that disabled feel when this is probably not a good idea BUT IMMA DO IT ANYWAY

Can be bought here: https://www.etsy.com/shop/fallendesigns

chronic illness terminology

health-deprecating: spoonie signature style of humor, necessary to cope with a life of illness, but that makes most healthy people really uncomfortable or respond with a sad face instead of laughing along with you which is really a buzzkill.

netflix and pills: a typical day off/ hang out sesh.

illnesia: when you have an invisible chronic illness and you tell healthy people about it but a week later they develop amnesia that they were ever told. repeat x infinity.

brainfrog: when your brains are so mushy that you can no make words? spell?? think??? ribbit????

grandma candies: this is what I call my chewable antacids, but it can be applied to many medications.

Add your own!

"This medication may cause drowsiness, dizziness, or increased fatigue."

Lol how would I even know

interesting comparisons i have come across about living with POTS:

- a potsie’s body reacts to standing the way a healthy person’s body reacts when they’re either a) extremely dehydrated, or b) bleeding out

- the effect of dehydration through the night on how potsies feel when they wake up is the equivalent of a hangover for a healthy person (so basically, we always wake up with hangovers)

- potsies’ heart rates when they stand up are the heart rate a healthy person would have during an extreme cardiovascular workout

Ehlers-Danlos Syndrome.

Cons: -dislocations -weak joints -PAIN -pots -fatigue -heart problems -more pain -why are my hands blue? -fragile skin and blood vessels -easy bruising -some more pain -gastrointestinal issues -weird wrinkles

Pros: -I can scratch every inch of my back

Pros: -I’m the most flexible person in yoga class

Pros: -I’ve never broken a bone because the force that would break most people’s bones instead dislocate the nearest joint(s)

Also, pros: -I get mistaken anywhere from 7-10 years younger than my actual age. Crappy collagen means I’m literally falling apart but my skin is perpetually youthful

Pro: I’ve never had to worry about having enough leg room because I can easily fold or curl up on seats

I can reach behind furniture without pulling it out too far from the wall

(via tank.sinatra)

Well, it was, wasn’t it?

“What are your plans for New Year’s Eve?” Me: