I just saw such a great disability term I personally haven’t ever seen before and I wanted to share it with everyone so here it is:
Usable hours, aka the amount of hours a day someone has where they can carry out tasks (school, work, showering, cooking, household tasks, being out of bed etc.)
I don’t know why but this feels so revolutionary to me 😂
If I’m honest it changes a lot for me but on average I can manage 4-5 whereas a healthy person might have 10-12 usable hours. Otherwise I’m sitting on the couch scrolling and watching YouTube or resting in bed.
Some days I can handle more and sometimes a lot less depending on how much I’ve done previously that week/month etc. It also depends a lot on the type of tasks, I manage mental tasks pretty well and typically write a decent amount but physical tasks exhaust me much more quickly.
I know this is a lot more than some people but instead of focusing on that I’m trying to focus on how much less it is than a healthy person. Having half as much time in a day I can be functional as the average person and during that time I’m still exhausted/in pain/having symptoms/struggling in ways an abled person wouldn’t.