Living on Starlight

me and the mutuals

my job is getting in the way of me being a desperate horny lesbian 24/7, i think i'm going to have to quit it

I love it when an artist puts out a concept album and the concept is that they had a mental breakdown

Chag Pesach sameach to every Jewish person. No matter your observance practices, whether you’re at a Seder with family, working or anything else. Every Jewish person deserves to feel safe, no matter their politics or visibility. Because right now? It’s beyond left/right. It’s simply being Jewish. So celebrate (or not) with lightness, love and above all, safety. Take care, be proud, chag Pesach sameach!

it’s insane to me that people are painting the protestors at columbia and yale as “anti-war.” in fact they are very much pro-war! they have cheered for iranian missiles and hamas rockets, shouted “october 7th will be every day” and “burn tel aviv to the ground.” they don’t want the war to end, they just want the side they support to succeed in killing more jews. absent that, they themselves are happy to harass and physically assault local jews that they can get their hands on.

— Louise Glück, ”Stars,” from The Seven Ages  (via fightculb)

It’s okay if the only thing you achieved today was getting out of bed. It’s also okay if you didn’t get out of bed.

Whilst in Oxford, I also did a bit of homage-paying to Dorothy L Sayers—found Balliol on purpose, stumbled across her birthplace on accident. Both delightful!

"and isolation is all that would remain"

i need people to understand that when a person with a chronic illness talks about the fatigue that comes with it, we're not talking about the tiredness that comes from a 10 hour shift at work, we're talking about the inherent exhausting heavy malaise that hangs on your entire body like a weighted blanket from the time you wake up in the morning and doesn't get any lighter as the day goes on.

fatigue doesn't come from exertion. it's just innate- and when it does come from exertion, it's been worse than the innate fatigue that was already there in the first place, and it adds on top of it, not replaces it.

hope you don’t mind me chiming in but this page is full of hygiene and daily care tips for bedbound people. it was written for people with severe myalgic encephalomyelitis but it could absolutely be helpful for anybody who needs to conserve energy!

the recent surge of articles on severe ME is shattering my heart. we’re looking at a live, ongoing portfolio of the NHS’s failure to protect young ME patients, the same failures that cast a shadow over both my childhood and my current life, and it’s so wild that things aren’t changing. there’s no repair, no apology for the highly preventable suffering or the deaths, which are mostly young women.

the improper care of ME patients isn’t because of a lack of funding, it’s because of ignorance & stubbornness. the bare minimum of appropriate care to prevent a severe ME patient from getting worse is to allow them to be somewhere dark, quiet, lying down, hydrated & fed, and somehow the NHS can’t even provide that. my main shred of hope is that this is finally being reported and i wonder if that will be the catalyst for a little bit of repair. i’m desperate to believe it will be

if you want to help, there’s a petition for millie which is still current as of April 2024. to me, nothing is a clearer demonstration of the nhs’s stubbornness than the fact that ME experts say millie must be fed 1) lying down, and 2) in a quiet/dark place, and the nhs is still refusing. like those are very simple things